Rare Disease Day

Results: 254



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1

Microsoft Word - Rare Disease Day final 2018_agenda.docx

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Source URL: crnd.nd.edu

Language: English - Date: 2018-01-23 11:54:10
    2

    YEAR IN REVIEW Global Genes™ is a leading rare disease advocacy organization with global reach to the worldwide rare community of patients, advocates, caregivers, and key rare disease stakeholders. Each day, Global

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    Source URL: globalgenes.org

    Language: English - Date: 2016-06-14 17:51:44
      3Health / Medicine / Epidemiology / Medical terminology / Rare diseases / Medical diagnosis / Global Genes / European Organisation for Rare Diseases / Orphan drug / Disease / Rare Disease Day / Draft:Rare Cancers

      Edelman-DiagnosisDoesntHaveToBeRareLogoV3

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      Source URL: www.shire.co

      Language: English - Date: 2015-09-14 17:42:58
      4Health care / Health / European Organisation for Rare Diseases / Diagnosis-related group / Rare disease / Rare Disease Day

      Koller 2012_Pharmaceutical dialogue.pdf

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      Source URL: www.swiss-economics.ch

      Language: English - Date: 2012-08-30 05:17:09
      5

      Rare-disease-day; 28. Februar 2013 Actelion launcht eine neue Informationsplattform für Lungenhochdruck! Rechtzeitig zum Tag der seltenen Erkrankungen am 28. Februar startet Actelion Österreich mit einer neuen Informat

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      Source URL: ruhigatmen.at

      Language: German - Date: 2013-09-03 06:09:55
        6

        YEAR IN REVIEW Global Genes™ is a leading rare disease advocacy organization with global reach to the worldwide rare community of patients, advocates, caregivers, and key rare disease stakeholders. Each day, Global

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        Source URL: globalgenes.org

        Language: English - Date: 2016-02-18 20:20:13
          7

          2015 Information Pack EURORDIS November 2014 Rare Disease Day 2015 – Official Partners – Participating National Alliances

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          Source URL: pfadvocates.org

          Language: English - Date: 2015-01-18 11:14:39
            8Global Genes Project / Medical ethics / Rare Disease Day / Patient advocacy / Breast cancer awareness / Rare diseases / Health / Medicine / Epidemiology

            2012 Global Genes | RARE Project Year In Review

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            Source URL: globalgenes.org

            Language: English - Date: 2015-02-05 16:42:11
            9Medical terms / Rare disease / Disease / Rare Disease Day / Patient safety organization / Epidemiology / Health / Medicine

            Letter of intent Rare Diseases Nordic Network of Patient Organisations In the spring of 2014, Nordic rare disease patient organizations created the Rare Diseases Nordic Network of Patient Organisations as a way to furthe

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            Source URL: sjaeldnediagnoser.dk

            Language: English - Date: 2014-11-16 01:45:18
            10

            Clementia Pharmaceuticals Highlights Role of Patient Community in the Fight Against Fibrodysplasia Ossificans Progressiva (FOP) Company to Host Webcast to Pay Tribute to FOP Community and Recognize Rare Disease Day MONTR

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            Source URL: clementiapharma.com

            - Date: 2015-02-24 13:50:44
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